Self-injurious behaviors with increased likelihood of injury in autistic youth: The role of distress linked to a strong preference for sameness.
Ferguson Emily F, Spackman Emily, Hardan Antonio Y, Uljarević Mirko
What this study means for families
This study looked at self-harm behaviors in nearly 1,900 autistic children and teens. The biggest predictor was emotional distress when routines were disrupted. Children who were very sensitive to sounds, textures, or lights, or who sought intense sensory experiences, were more likely to engage in self-harm. Families with lower incomes also saw higher rates of self-harm in their autistic children. The research shows that understanding what triggers these behaviors is key to helping prevent them.
Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.
Research summary
This large-scale study of 1,892 autistic youth examined predictors of self-injurious behaviors categorized by injury potential. Distress linked to insistence on sameness (preference for routines) emerged as the strongest predictor of all self-injurious behaviors, even after controlling for other factors. Sensory hypersensitivity and sensory-seeking behaviors were strong predictors of self-injury, while hyposensitivity showed weaker associations. Lower household income strongly predicted increased self-injurious behavior severity.
Higher speech ability was associated with lower-likelihood injury behaviors but reduced higher-likelihood injury behaviors. These findings highlight the complex interplay between routine disruption distress, sensory processing differences, and socioeconomic factors in predicting self-injurious behaviors among autistic youth.
Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.
Key findings
- 1
Distress associated with insistence on sameness was the strongest predictor of all types of self-injurious behaviors
Confidence: highRelevance: high - 2
Sensory hypersensitivity and sensory-seeking behaviors were strong predictors of self-injurious behaviors
Confidence: highRelevance: high - 3
Lower household income was strongly associated with greater self-injurious behavior severity
Confidence: highRelevance: moderate - 4
Higher speech level was positively associated with low-likelihood injury behaviors but negatively associated with high-likelihood injury behaviors
Confidence: moderateRelevance: moderate
Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.
Clinical implications
Interventions should prioritize addressing distress from routine disruptions and managing sensory processing differences. Clinicians should assess insistence on sameness as a key risk factor for self-injury. Socioeconomic factors may need consideration in treatment planning. Different intervention approaches may be needed based on communication abilities and injury risk levels.
Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.
Limitations
The abstract does not specify the study design, data collection methods, or measurement tools used. Causal relationships cannot be established from this analysis. The categorization criteria for high vs. low likelihood injury behaviors are not detailed. Long-term outcomes and intervention effectiveness are not addressed.
Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.
Original abstract
Self-injurious behaviors in autistic youth vary widely in their form, intensity, and potential for physical injury. This study explored predictors of two categories of self-injurious behaviors that were delineated based on their potential for physical injury (self-injurious behavior-High Likelihood and self-injurious behavior-Low Likelihood), with a focus on the role of distress linked to a strong preference for routines (otherwise known as insistence on sameness). The sample included 1892 autistic youth (M = 10.82, SD = 4.14; 22% females) across the United States. Distress associated with insistence on sameness was the strongest predictor of total self-injurious behavior scores, self-injurious behavior-Low Likelihood, and self-injurious behavior-High Likelihood, after controlling for demographic factors and speech level, and remained a unique predictor after accounting for variance explained by other restricted and repetitive behaviors.
Sensory hypersensitivity and sensory-seeking were strong unique predictors of all self-injurious behaviors, while hyposensitivity was a weaker predictor of self-injurious behavior total and self-injurious behavior-Low Likelihood, and a non-significant predictor of self-injurious behavior-High Likelihood. Among demographic factors, lower household income was the strongest predictor of all self-injurious behaviors. Higher speech level was a positive predictor of self-injurious behavior-Low Likelihood but a negative predictor of self-injurious behavior-High Likelihood. These findings demonstrate the role of distress associated with insistence on sameness in manifestations of self-injurious behaviors and highlight the importance of exploring predictors at a more granular level to inform targeted interventions and support.Lay AbstractThis study explored factors associated with repetitive self-injurious behaviors in autistic youth, focusing on emotional distress linked to a strong preference for routines (often referred to as insistence on sameness), a category of behaviors that includes difficulties with change and a strong preference for routines and/or rituals.
We examined two categories of self-injurious behaviors: lower likelihood of physical injury (self-injurious behavior-Low Likelihood) and higher likelihood of physical injury (self-injurious behavior-High Likelihood). The study included 1892 autistic youth of varying ages and cognitive abilities. The main finding was that distress associated with disruptions to routines was the strongest predictor of all types of self-injurious behavior. Youth with greater sensitivity to sensory input or sensory-seeking behaviors were more likely to engage in self-injurious behaviors that could increase risk of physical injury.
In contrast, those with reduced sensitivity to sensory input were less likely to engage in self-injurious behaviors. Demographic factors also played a role in the manifestation and severity of self-injurious behaviors. Lower household income was strongly associated with greater self-injurious behavior severity. In addition, higher speech production (e.g. speaking in full sentences) was associated with greater severity of self-injurious behavior-Low Likelihood and self-injurious behavior-High Likelihood.
These findings highlight the complexity of self-injurious behaviors in autistic youth and the importance of understanding the different factors that contribute to these behaviors. This study may help to contribute to the development of more responsive, tailored interventions for self-injurious behaviors among autistic youth.
Evidence Grade
moderate
Grade assigned by AutismInsights based on study type and published abstract.
Study Details
- Journal
- Autism : the international journal of research and practice
- Year
- 2026
- PMID
- 41361937
- DOI
- 10.1177/13623613251396036
MeSH Terms