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Exploring the childbearing decision-making process in mothers of children with autism spectrum disorder and designing and validation of a childbearing program: A study protocol.

Reproductive health2025

Salarfard Mahla, Khadivzadeh Talat, Moghri Javad, Mirzakhani Kobra

What this study means for families

Researchers are planning a study to understand how mothers of autistic children make decisions about having more children. They will interview mothers to learn about their experiences, then create a support program to help with these difficult decisions. The program will be reviewed by experts before being made available to families and healthcare providers.

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Research summary

This is a study protocol describing a three-phase research plan to explore childbearing decision-making processes in mothers of autistic children. The study will use qualitative grounded theory methodology to understand these mothers' experiences, followed by development and validation of a supportive program. Phase 1 involves semi-structured interviews with mothers using purposive sampling. Phase 2 will design a logic model-based program to support childbearing decisions.

Phase 3 will validate the program using expert panels. The research aims to address the complex fertility decisions faced by families with autistic children, considering the multifactorial nature of autism spectrum disorder.

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Clinical implications

No clinical implications can be determined as this is a protocol for future research. Once completed, the study may provide insights into supporting reproductive decision-making for families affected by autism.

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Limitations

This is a study protocol only - no actual results are reported. The study has not yet been conducted, so findings, effectiveness, and real-world applicability remain unknown.

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Original abstract

One of the most important demographic challenges in the world over the last three decades has been the significant decline in fertility rates. Fertility decision making is one of the major events in a couple's life and can be a complex process, especially for families who have a child with a history of a multifactorial disease, such as autism spectrum disorder. Therefore, the present study will be aim to discover the childbearing decision-making process in mothers of children with autism spectrum disorder and design and validate a childbearing program for this mothers. The present study will be conducted in three phases.

In the first stage, a qualitative research will be conducted using the Strauss and Corbin grounded theory approach. In this study, the main participants are mothers who have at least one autistic child, who meet the inclusion criteria for the study. In the first phase, sampling will be done with purposive and theoretical method. The date will be gathered through semi-structured in-depth interviews, field notes, and observations of individual interactions.

The Strauss and Corbin 2015 approach will be used to analyze the data. MAXQDA 2020 software will be used for managing the process of data analysis. In the second phase of the present study, a program using a logic model will be designed to support decision-making regarding childbearing among mothers of children with autism. Finally, validation of the developed program will be achieved by using the nominal group technique with a panel of experts during the third phase.

In this research, as a result of the needs, challenges and problems of mothers of children with autism spectrum disorder in the context of their decision to have children, a supportive program will be presented using a logical model that is suitable for policy makers, planners and service providers to be implemented in the socio-cultural context of the study.

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Evidence Grade

Emerging

emerging

Grade assigned by AutismInsights based on study type and published abstract.

Study Details

Journal
Reproductive health
Year
2025
PMID
41035037
DOI
10.1186/s12978-025-02142-7

MeSH Terms

HumansAutism Spectrum DisorderFemaleDecision MakingMothersQualitative ResearchPregnancyAdultChildResearch DesignFamily Planning Services