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EmergingSystematic Review

Race and Ethnicity Reporting in Occupational Therapy Research Among Autistic Youth.

OTJR : occupation, participation and health2024

Little Lauren M, Avery Anna, Tomchek Scott, Baker Alissa, Wallisch Anna, Dean Evan

What this study means for families

This study looked at how well occupational therapy research includes children from different racial and ethnic backgrounds. Researchers found that many studies don't report who participated, especially in areas like daily living skills and play. School-based studies were better at including diverse participants than clinic-based studies. This lack of diversity in research means we don't know if treatments work equally well for all children.

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Research summary

This systematic review examined race and ethnicity reporting patterns in occupational therapy research with autistic youth under 18 years (2013-2021). The analysis revealed significant gaps in demographic reporting across different intervention areas and settings. Activities of daily living/instrumental activities of daily living (ADLs/IADLs) and play interventions showed poor reporting rates (66.7% each), while social participation in schools and education/work interventions demonstrated complete reporting (100%). Sample diversity was highest in school-based research but most limited in clinical settings.

The findings highlight how systemic racism in research participation perpetuates health inequities among autistic children and adolescents from historically marginalized racial and ethnic groups.

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Key findings

  • 1

    ADL/IADL and play interventions had low race/ethnicity reporting rates (66.7% each)

    Confidence: highRelevance: high
  • 2

    Social participation in schools and education/work interventions showed complete reporting (100%)

    Confidence: highRelevance: moderate
  • 3

    Sample diversity was greatest in school-based research and most limited in clinic-based settings

    Confidence: highRelevance: high

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Clinical implications

Results indicate significant gaps in diverse representation across occupational therapy research settings and intervention types. Clinicians should be aware that evidence base may not adequately represent outcomes for autistic youth from historically marginalized communities, particularly in clinical settings and ADL/play interventions.

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Limitations

This is a secondary analysis of existing systematic review data. Sample sizes and specific demographic breakdowns were not reported. The study period was limited to 2013-2021, and findings may not reflect current research practices.

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Original abstract

Historically marginalized racial and ethnic groups are underrepresented in autism research broadly; however, patterns of inclusion in occupational therapy research are unknown.In this secondary data analysis, we examined race and ethnicity reporting across articles included in a systematic review of evidence related to occupational therapy practice with autistic individuals <18 years (2013-2021).Two team members reached >90% interrater coding agreement in race and ethnicity reporting across articles in ADLs/IADLs, education/work, play, sleep, and social participation in clinics, homes/communities, and schools.Intervention outcomes of ADL/IADLs (66.7%) and play (66.7%) had low rates of reporting, while social participation in schools (100%) and education/work (100%) had higher rates of reporting. Sample diversity was greatest among research in schools and most limited in clinic-based settings.Systemic racism that limits individuals' participation in occupational therapy research perpetuates racial and ethnic health inequities among autistic children and adolescents.

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Evidence Grade

Emerging

moderate

Grade assigned by AutismInsights based on study type and published abstract.

Study Details

Type
Systematic Review
Journal
OTJR : occupation, participation and health
Year
2024
PMID
38281154
DOI
10.1177/15394492231225199

MeSH Terms

HumansOccupational TherapyAdolescentChildAutistic DisorderEthnicityRacial GroupsSocial ParticipationActivities of Daily LivingMale