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How much of my true self can i show? social adaptation in autistic women: a qualitative study.

BMC psychology2023

Sunagawa Mebuki

What this study means for families

Researchers interviewed 10 autistic women about how they handle social situations. They found that these women try to fit in based on past negative experiences, focusing on keeping relationships stable and meeting social expectations. The study suggests that instead of asking autistic people to change, society should create more accepting environments where autistic women can be themselves.

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Research summary

This qualitative study explored how autistic women perceive social adaptation through interviews with ten women aged 28-50. Using grounded theory analysis, researchers identified two core themes: maintaining stable relationships and fulfilling social roles based on past experiences of 'maladaptation.' Participants sought adaptations within reasonable limits to maintain daily life stability. Findings revealed that autistic women's adaptation strategies were shaped by accumulated negative experiences. The study emphasizes the importance of environmental change rather than requiring autistic individuals to modify themselves, and highlights the need for spaces where autistic women can be accepted authentically.

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Key findings

  • 1

    Autistic women's social adaptation is driven by two core perceptions: maintaining stable relationships and fulfilling social roles

    Confidence: moderateRelevance: Helps professionals understand the specific motivations behind adaptive behaviors in autistic women
  • 2

    Adaptation strategies are based on accumulated past negative experiences of 'maladaptation'

    Confidence: moderateRelevance: Indicates potential trauma-informed approaches needed in support planning
  • 3

    Participants sought adaptations within reasonable ranges to maintain daily life stability

    Confidence: moderateRelevance: Suggests the importance of balanced, sustainable support strategies rather than intensive adaptation training

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Clinical implications

Supports environmental modifications over individual adaptation training. Emphasizes need for trauma-informed care approaches. Highlights importance of creating accepting spaces for authentic self-expression. Suggests support should focus on client choice and self-determination rather than conformity to neurotypical standards.

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Limitations

Small sample size of 10 participants limits generalizability. Single qualitative study design prevents broader population inferences. Age range (28-50) may not represent experiences across all life stages. No comparison with male perspectives or non-autistic controls provided.

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Original abstract

Social adaptation is often aimed at supporting autistic people, yet its specific goals may not include their actual perspectives. That is, the state of adaptation is judged based on the standards and values of non-autistic people. This qualitative study focused on autistic women's perceptions of social adaptation and examined their lived experiences in daily life, as adaptive behaviors have often been reported as a "female autism phenotype." Semi-structured interviews were conducted face-to-face with ten autistic women aged 28-50 years (M = 36.7; standard SD = 7.66). The analysis was conducted based on the grounded theory approach.

Two core perceptions were identified: maintaining stable relationships and fulfilling social roles based on past experiences of "maladaptation." The participants sought adaptations within a reasonable range and adjusted their balance with society to maintain stability in their daily lives. The findings indicated that autistic women's perceptions of adaptation were based on the accumulation of past negative experiences. Further harmful efforts should be prevented. Support for autistic people to make their own choices in life is also important.

Moreover, autistic women need a place where they can be themselves and be accepted as they are. This study showed the importance of changing the environment rather than modifying autistic people to adapt to a society.

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Evidence Grade

Emerging

limited

Grade assigned by AutismInsights based on study type and published abstract.

Study Details

Journal
BMC psychology
Year
2023
PMID
37138313
DOI
10.1186/s40359-023-01192-5

MeSH Terms

FemaleHumansAutistic DisorderQualitative ResearchAdaptation, Psychological