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Factors associated with mental health symptoms among UK autistic children and young people and their parents during the COVID-19 pandemic.

Autism : the international journal of research and practice2023

Palmer Melanie, Chandler Susie, Carter Leno Virginia, Mgaieth Farah, Yorke Isabel, Hollocks Matthew, Pickles Andrew, Slonims Vicky, Scott Stephen, Charman Tony, Simonoff Emily

What this study means for families

This study looked at how autistic children and teens coped during COVID-19 lockdowns in the UK. Families did better when children enjoyed their learning from home and spent more time outside. Children who had ADHD before the pandemic found it harder to cope during lockdowns. Parents who struggled during the pandemic often had mental health challenges before COVID-19 too. The research suggests helping children enjoy learning and get outside more could support mental health during difficult times.

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Research summary

This UK study examined factors influencing mental health outcomes for autistic children, teenagers, and their parents during COVID-19 pandemic restrictions. The research investigated how pre-pandemic functioning affected pandemic coping across two age groups: primary school-aged children and teenagers. Key protective factors identified included greater engagement and enjoyment in educational provision during the pandemic and increased outdoor activity, both associated with better mental health outcomes for children and parents. Pre-existing ADHD symptoms predicted greater difficulties during the pandemic, with primary school children showing increased ADHD and behavioral problems, while teenagers experienced more emotional difficulties.

Parental mental health during the pandemic was strongly linked to pre-pandemic mental health status.

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Key findings

  • 1

    Greater engagement and enjoyment in education during the pandemic was associated with better mental health outcomes for both autistic children and their parents

    Confidence: moderateRelevance: Educational engagement appears to be a protective factor for family mental health during disruption
  • 2

    Increased outdoor activity during the pandemic was linked with better child and parental mental health

    Confidence: moderateRelevance: Physical activity and outdoor time may serve as important interventions during periods of restriction
  • 3

    Pre-pandemic ADHD symptoms predicted greater ADHD and behavioral problems in primary school children and emotional problems in teenagers during the pandemic

    Confidence: moderateRelevance: Autistic children with co-occurring ADHD may need additional support during periods of disruption
  • 4

    Parental mental health during the pandemic was associated with pre-pandemic mental health status

    Confidence: moderateRelevance: Parents with existing mental health vulnerabilities may need targeted support during crises

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Clinical implications

Practitioners should prioritize educational engagement strategies and outdoor activities as protective interventions. Enhanced ADHD support and medication access are crucial during disruptions. Early identification and support for parents with pre-existing mental health vulnerabilities could prevent family-wide deterioration during crises.

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Limitations

Study type and sample size are not reported, limiting assessment of methodology and generalizability. The specific measures used and statistical analyses are unclear from the abstract. Causal relationships cannot be established from this observational study design.

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Original abstract

The COVID-19 pandemic and the associated restrictions impacted all of society. There is emerging evidence showing a range of impacts on autistic children and young people and their families. Further research that looks at how individuals coped during the pandemic while considering how they were doing before the pandemic is needed.This article explores whether how well autistic youth were doing before the pandemic influenced how they coped during the pandemic. It also looked at how well their parents were doing during the pandemic and whether any pre-pandemic factors influenced how they coped.

Samples of both primary-school-aged autistic children and autistic teenagers and their parents were surveyed to answer these questions. More engagement and enjoyment in education provision during the pandemic and getting outside more were linked with better child and parental mental health during the pandemic. More attention deficit hyperactivity disorder before the pandemic was linked with more attention deficit hyperactivity disorder and behavioural problems during the pandemic in primary-school-aged autistic children, and more emotional problems during the pandemic in autistic teenagers. Parents with more mental health problems during the pandemic had more mental health problems before the pandemic.Encouraging engagement and enjoyment in education and promoting physical exercise are key intervention targets.

Ensuring access to attention deficit hyperactivity disorder medication and support is important, especially if this is managed jointly across school and home.

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Evidence Grade

Emerging

limited

Grade assigned by AutismInsights based on study type and published abstract.

Study Details

Journal
Autism : the international journal of research and practice
Year
2023
PMID
36847345
DOI
10.1177/13623613231153694

MeSH Terms

AdolescentHumansChildMental HealthPandemicsCOVID-19Autistic DisorderAutism Spectrum DisorderParentsUnited Kingdom