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Autism research : official journal of the International Society for Autism Research2023

Singer Alison, Lutz Amy, Escher Jill, Halladay Alycia

What this study means for families

This article discusses debates about which words should be used to describe autism. Some people want to avoid certain terms to reduce negative attitudes. However, the authors argue that restricting language could harm autism research and clinical care. They believe scientists and doctors need to use all accurate medical terms to properly describe and help the wide range of autistic people.

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Research summary

This commentary addresses recent recommendations within the autism community to restrict certain terminology used to describe autism-related challenges and impairments. The authors argue that such language restrictions, developed by a subset of the autism community, are already causing negative consequences for research and clinical practice. They contend that limiting scientific terminology to reduce stigma may ultimately harm people with autism by constraining researchers' and clinicians' ability to accurately describe the full spectrum of autism presentations. The paper advocates for maintaining access to all scientifically accurate terms necessary to study and support the diverse range of autistic individuals.

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Key findings

  • 1

    Language restrictions on autism terminology are being proposed by only a subset of the autism community

    Confidence: The abstract clearly states this but provides no supporting dataRelevance: May impact how clinicians document and communicate about autism presentations
  • 2

    Proposed terminology limitations are already causing negative consequences for scientific and clinical work

    Confidence: Authors assert this but no specific evidence is provided in the abstractRelevance: Could affect quality of autism research and clinical practice

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Clinical implications

May influence how professionals discuss autism characteristics with families and document clinical observations. The debate over terminology could affect research communication, clinical documentation practices, and professional training approaches in autism care.

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Limitations

This appears to be a commentary or opinion piece rather than empirical research. No data, methodology, or evidence is presented to support the claims made about negative consequences of language restrictions.

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Original abstract

Individuals diagnosed with autism spectrum disorder (ASD) present with a highly diverse set of challenges, disabilities, impairments and strengths. Recently, it has been suggested that researchers and practitioners avoid using certain words to describe the difficulties and impairments experienced by individuals with ASD to reduce stigma. The proposed limitations on terminology were developed by only a subset of the autism community, and the recommendations are already causing negative consequences that may be harmful to future scientific and clinical endeavors and, ultimately, to people with ASD. No one should have the power to censor language to exclude the observable realities of autism.

Scientists and clinicians must be able to use any scientifically accurate terms necessary to describe the wide range of autistic people they study and support, without fear of censure or retribution.

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Evidence Grade

Emerging

emerging

Grade assigned by AutismInsights based on study type and published abstract.

Study Details

Journal
Autism research : official journal of the International Society for Autism Research
Year
2023
PMID
36508163
DOI
10.1002/aur.2876

MeSH Terms

HumansAutistic DisorderSemanticsAutism Spectrum DisorderLanguage