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Autism-related language preferences of English-speaking individuals across the globe: A mixed methods investigation.

Autism research : official journal of the International Society for Autism Research2023

Keating Connor Tom, Hickman Lydia, Leung Joan, Monk Ruth, Montgomery Alicia, Heath Hannah, Sowden Sophie

What this study means for families

This study asked 654 autistic adults from different countries what language they prefer when talking about autism. Most people liked terms like 'autistic person' and 'autism' rather than alternatives. While preferences were similar across countries, there's no single 'right' way to talk about autism. The key finding is that we should respect each person's individual language preferences.

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Research summary

This mixed-methods study examined language preferences of 654 English-speaking autistic adults across multiple countries. The research investigated preferences for identity-first versus person-first language and other autism-related terminology. Despite some variation between countries, consistent preferences emerged for terms like 'Autism', 'Autistic person', 'Is autistic', 'Neurological/Brain Difference', 'Differences', 'Challenges', 'Difficulties', 'Neurotypical people', and 'Neurotypicals'. Thematic analysis identified six core themes explaining preferences and revealed a guiding principle of respecting personal preferences.

The study found no universally accepted way to discuss autism, highlighting the importance of individual choice in language use.

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Key findings

  • 1

    Consistent preference for terms 'Autism', 'Autistic person', 'Is autistic' across countries

    Confidence: moderateRelevance: Informs appropriate language use in clinical settings
  • 2

    No universally accepted way to discuss autism exists

    Confidence: moderateRelevance: Highlights need for individualized language approaches
  • 3

    Guiding principle identified: respect personal preferences

    Confidence: moderateRelevance: Should guide professional communication practices

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Clinical implications

Professionals should ask autistic individuals about their preferred terminology rather than assuming. Training programs should emphasize respecting personal language preferences. Clinical documentation and communication should be adapted to individual preferences where possible.

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Limitations

Study limited to English-speaking participants. Sample size per country not specified. Abstract doesn't detail methodology rigor or potential selection biases. Unclear how participants were recruited across different countries.

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Original abstract

Over the past two decades, there have been increasing discussions around which terms should be used to talk about autism. Whilst these discussions have largely revolved around the suitability of identity-first language and person-first language, more recently this debate has broadened to encompass other autism-related terminology (e.g., 'high-functioning'). To date, academic studies have not investigated the language preferences of autistic individuals outside of the United Kingdom or Australia, nor have they compared levels of endorsement across countries. Hence, the current study adopted a mixed-methods approach, employing both quantitative and qualitative techniques, to explore the linguistic preferences of 654 English-speaking autistic adults across the globe.

Despite variation in levels of endorsement between countries, we found that the most popular terms were similar-the terms 'Autism', 'Autistic person', 'Is autistic', 'Neurological/Brain Difference', 'Differences', 'Challenges', 'Difficulties', 'Neurotypical people', and 'Neurotypicals' were consistently favored across countries. Despite relative consensus across groups, both our quantitative and qualitative data demonstrate that there is no universally accepted way to talk about autism. Our thematic analysis revealed the reasons underlying participants' preferences, generating six core themes, and illuminated an important guiding principle-to respect personal preferences. These findings have significant implications for informing practice, research and language policy worldwide.

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Evidence Grade

Emerging

moderate

Grade assigned by AutismInsights based on study type and published abstract.

Study Details

Journal
Autism research : official journal of the International Society for Autism Research
Year
2023
PMID
36474364
DOI
10.1002/aur.2864

MeSH Terms

AdultHumansAutistic DisorderAutism Spectrum DisorderAustraliaQualitative ResearchLanguage