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Perspective: The role of diversity advisory boards in autism research.

Autism : the international journal of research and practice2023

Williams Ed-Dee G, Smith Matthew J, Boyd Brian

What this study means for families

This article suggests that autism research needs to include more people from different racial, ethnic, and gender backgrounds. The authors recommend creating special advisory groups to help researchers include more diverse participants and make sure research addresses the needs of all autistic people, not just some groups.

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Research summary

This perspective article advocates for establishing diversity advisory boards in autism research to address underrepresentation of racial, ethnic, and gender diverse autistic individuals. The authors argue these boards would serve three key functions: ensuring researchers intentionally address diversity issues, improving recruitment of diverse participants, and considering diverse contexts to enhance intervention effectiveness in community settings. The paper presents arguments for why diversity advisory boards are necessary and provides guidance on how to form and implement them in autism research and intervention development.

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Key findings

  • 1

    Diversity advisory boards could help ensure greater inclusion of racial, ethnic, and gender diverse autistic individuals in research

    Confidence: emergingRelevance: High - addresses representation gaps in autism research that may limit generalizability of findings
  • 2

    Advisory boards may improve intervention effectiveness by considering diverse contexts for community implementation

    Confidence: emergingRelevance: High - could enhance real-world applicability of autism interventions across diverse populations

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Clinical implications

While promising in concept, diversity advisory boards require empirical validation. If implemented, they could potentially improve research inclusivity and intervention generalizability, but their actual impact on participant diversity and intervention outcomes remains to be demonstrated through systematic evaluation.

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Limitations

This is a perspective article presenting arguments rather than empirical data. No evidence is provided to demonstrate the effectiveness of diversity advisory boards, and specific implementation details or evaluation methods are not thoroughly described.

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Original abstract

This article argues that using groups of individuals that specifically focus on addressing issues with diversity in autism research and autism intervention development are key in ensuring that a greater amount of racial, ethnic, and gender diverse autistic individuals are included in the research and that the research is addressing the needs of these individuals and groups. We call these groups a diversity advisory board. A diversity advisory board will help improve diversity in autism research and intervention development by making sure that autism researchers (1) are intentional about addressing issues of diversity in their research and (2) are able to recruit a greater number of autistic individuals with diverse identities, and (3) by giving greater consideration to the context of diverse autistic individuals which will help autism-focused interventions work better in community settings. We give a short description of these arguments and ideas for how to form and use a diversity advisory board.

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Evidence Grade

Emerging

emerging

Grade assigned by AutismInsights based on study type and published abstract.

Study Details

Journal
Autism : the international journal of research and practice
Year
2023
PMID
36336998
DOI
10.1177/13623613221133633

MeSH Terms

HumansAutistic DisorderAutism Spectrum DisorderDissent and DisputesResearch Personnel