Using the COM-B Model and Theoretical Domains Framework to Understand Workplace Disclosure Experiences, Influencers, and Needs Among Autistic Young Adults.
Tomas Vanessa, Kingsnorth Shauna, Kirsh Bonnie, Anagnostou Evdokia, Lindsay Sally
What this study means for families
Researchers talked to 23 autistic young adults about whether to tell their employers about their autism. They found five main things that influence this difficult decision: what the workplace is like, what they think will happen if they tell, personal feelings about their autism, how motivated they are to disclose, and knowing how to actually do it. The study shows we need better support to help autistic young people make these workplace decisions.
Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.
Research summary
This qualitative study examined workplace disclosure decision-making among 23 autistic young adults using focus groups and the COM-B Model with Theoretical Domains Framework. Five key themes emerged: workplace environment factors, perceptions of disclosure outcomes, personal identity considerations, disclosure-related ambitions and determination, and practical know-how about disclosure processes. The research identified complex factors influencing whether autistic young adults choose to disclose their autism at work and highlighted gaps in available support for this decision-making process. The findings suggest need for targeted disclosure support tools and employer education to create more inclusive workplace environments.
Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.
Key findings
- 1
Five key themes influence disclosure decisions: workplace environment, perceptions of outcomes, personal identity factors, disclosure motivation, and practical knowledge
Confidence: moderateRelevance: high - 2
Autistic young adults face complex decision-making around workplace disclosure with minimal research-based support available
Confidence: moderateRelevance: high - 3
Both individual support for disclosure decisions and employer education for inclusive workplaces are needed
Confidence: moderateRelevance: high
Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.
Clinical implications
Clinicians should recognize the complexity of workplace disclosure decisions for autistic young adults. Assessment of disclosure readiness and decision-making support may be beneficial. Collaboration with employers and workplace advocates could help create more inclusive environments that reduce disclosure-related stress.
Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.
Limitations
Single qualitative study with focus groups only. Sample size of 23 may limit generalizability. No comparison groups or longitudinal follow-up. Limited detail provided about participant demographics or recruitment methods in the abstract.
Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.
Original abstract
For autistic young adults, deciding whether to disclose their autism at work is complex. Minimal research explores what they need to support disclosure and what influences decisions. To understand disclosure needs and influencers, we explored (i) disclosure decision-making experiences and (ii) perceptions of the disclosure process among autistic young adults. We conducted focus groups using the Capability, Opportunity, Motivation, Behaviour Model and Theoretical Domains Framework (TDF).
We analyzed data from 23 participants and mapped onto the TDF to develop five themes: (1) workplace environment, (2) perceptions of disclosure outcomes, (3) personal factors and identity, (4) disclosure-related ambitions and determination, and (5) know-hows of disclosure. Future work should prioritize developing disclosure decision-making supports and investigate employer roles in fostering inclusive workplaces.
Evidence Grade
limited
Grade assigned by AutismInsights based on study type and published abstract.
Study Details
- Journal
- Journal of autism and developmental disorders
- Year
- 2023
- PMID
- 36171492
- DOI
- 10.1007/s10803-022-05766-x
MeSH Terms