From 'Refrigerator Mothers' to Empowered Advocates: The Evolution of the Autism Parent.
Cleary Michelle, West Sancia, Mclean Loyola
What this study means for families
This paper looks at how society's view of autism parents has changed over time. In the past, parents (especially mothers) were wrongly blamed for 'causing' autism through poor parenting. Now we understand autism has biological causes, and parents are seen as important advocates and supporters who help their children and educate the community about autism.
Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.
Research summary
This historical perspective examines the evolution of societal perceptions of autism parents, from the harmful 'refrigerator mother' theory that blamed parents for causing autism, to current understanding recognizing parents as empowered advocates. The paper traces how advances in neuroscience and developmental research shifted understanding toward recognizing strong neurological contributions to autism. This paradigm shift has repositioned parents from being blamed to being recognized as crucial supporters in their child's regulation and development. The concept of co-regulation has emerged, highlighting parents' collective agency in advocacy, support provision, and educating society about the needs and value of autistic individuals.
Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.
Key findings
- 1
Historical shift from blaming 'refrigerator mothers' to recognizing parents as empowered advocates
Confidence: limitedRelevance: Challenges historical stigma and supports current parent-professional partnerships - 2
Neuroscience research has established strong neurological contributions to autism
Confidence: limitedRelevance: Provides biological foundation that reduces parental blame and guilt - 3
Parents now recognized as having important role in supporting child regulation through co-regulation
Confidence: limitedRelevance: Emphasizes therapeutic value of parent-child interactions
Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.
Clinical implications
This historical perspective supports current practice approaches that value parent-professional partnerships and recognize parents as experts on their children. It may help reduce stigma and guilt that some parents experience, while emphasizing the importance of co-regulation strategies in therapeutic interventions.
Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.
Limitations
This appears to be a historical perspective or commentary rather than an empirical study. No methodology, sample size, or data collection methods are reported. The analysis relies on historical narrative rather than systematic research evidence.
Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.
Original abstract
A historical perspective offers a chance to reflect on unfolding narratives. The emergence of the diagnosis of autism attracted some positions of blame for "refrigerator mothers". With ensuing neuroscience and developmental research and more nuanced biopsychosocial models, this gave way to notions of strong neurological contributions to the disorder and the positive role of parents supporting the regulation of their child. The notion of co-regulation then emerges with collective agency by parents to offer advocacy and support for those with ASD and their parents and an important role in educating society around the needs and value of those with ASD.
Evidence Grade
emerging
Grade assigned by AutismInsights based on study type and published abstract.
Study Details
- Journal
- Issues in mental health nursing
- Year
- 2023
- PMID
- 36049183
- DOI
- 10.1080/01612840.2022.2115594
MeSH Terms