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Autistic experiences of applied behavior analysis.

Autism : the international journal of research and practice2023

Anderson Laura K

What this study means for families

Seven autistic adults shared their childhood experiences with ABA therapy. While they found some benefits, most remembered traumatic experiences and felt the therapy tried to make them act 'normal' rather than accepting who they are. They experienced lasting negative effects and believe ABA practitioners should listen more to autistic people's perspectives and consider other support approaches.

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Research summary

This qualitative study examined the retrospective experiences of seven autistic adults who received Applied Behavior Analysis (ABA) interventions during childhood. Participants reported significant concerns about their ABA experiences, including traumatic memories and long-term negative consequences. While some benefits were acknowledged, participants felt ABA treated them as problems to be fixed rather than supporting their authentic selves. Key themes included trauma from ABA experiences, rejection of the goal to make autistic children behave like neurotypical peers, ethical concerns about the intervention, and recommendations for practitioners to listen to autistic voices and consider alternative approaches.

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Key findings

  • 1

    Autistic adults reported traumatic memories from childhood ABA interventions

    Confidence: limitedRelevance: high
  • 2

    Participants rejected the goal of making autistic children behave like neurotypical peers

    Confidence: limitedRelevance: high
  • 3

    Some benefits were reported but were outweighed by significant long-term negative consequences

    Confidence: limitedRelevance: high
  • 4

    Participants viewed ABA as an unethical intervention approach

    Confidence: limitedRelevance: moderate

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Clinical implications

Findings highlight the importance of considering autistic perspectives when implementing behavioral interventions. Practitioners should carefully evaluate potential long-term psychological impacts and ensure interventions respect autistic identity rather than attempting normalization. Alternative, neurodiversity-affirming approaches warrant consideration.

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Limitations

Very small sample size (n=7) limits generalizability. Retrospective recall may be subject to memory bias. No comparison with positive ABA experiences or control group. Study design and methodology details not provided in abstract.

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Original abstract

Autism spectrum disorder is a developmental disability affecting individuals across their entire lifespan. Autistic individuals have differences from nonautistic people (sometimes called allistic or neurotypical people) in social skills, communication, and atypical interests and/or repetitive behaviors. Applied behavior analysis is one of the first and most common interventions recommended for autistic children. However, autistic individuals argue that applied behavior analysis damages their mental health and treats them as though they are a problem to be fixed.

This study examined the experiences of seven autistic individuals who received applied behavior analysis interventions as children to understand what autistic adults think about their applied behavior analysis interventions, how they feel about the applied behavior analysis interventions they received, and what recommendations autistic adults have for the future of applied behavior analysis. The findings include: Autistic adults remember traumatic events from applied behavior analysis, do not believe that they should be made to behave like their peers, gained some benefits but suffered significant negative long-term consequences, believe that applied behavior analysis is an unethical intervention, and recommend that applied behavior analysis practitioners listen to autistic people and consider using interventions in place of applied behavior analysis.

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Evidence Grade

Emerging

emerging

Grade assigned by AutismInsights based on study type and published abstract.

Study Details

Journal
Autism : the international journal of research and practice
Year
2023
PMID
35999706
DOI
10.1177/13623613221118216

MeSH Terms

AdultChildHumansAutistic DisorderAutism Spectrum DisorderApplied Behavior AnalysisAuditory PerceptionCommunication