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Does learning you are autistic at a younger age lead to better adult outcomes? A participatory exploration of the perspectives of autistic university students.

Autism : the international journal of research and practice2023

Oredipe Tomisin, Kofner Bella, Riccio Ariana, Cage Eilidh, Vincent Jonathan, Kapp Steven K, Dwyer Patrick, Gillespie-Lynch Kristen

What this study means for families

Researchers asked 78 autistic university students about when they found out they were autistic and how happy they are with their lives now. Students who learned they were autistic when they were younger felt happier about their lives as adults. The students in this study believe parents should tell children they are autistic as early as possible, in positive and age-appropriate ways.

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Research summary

This participatory research study examined whether earlier autism disclosure leads to better adult outcomes by surveying 78 autistic university students. The study was conducted by a collaborative team of autistic and non-autistic researchers. Participants reported how they learned about their autism diagnosis and their current life satisfaction. Results indicated that students who learned they were autistic at younger ages reported higher current life satisfaction compared to those diagnosed later.

Conversely, those diagnosed later showed greater initial happiness about their autism identity upon learning of their diagnosis. The findings suggest early disclosure may be beneficial for long-term wellbeing, with participants recommending against delaying disclosure until adulthood.

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Key findings

  • 1

    Students who learned they were autistic at younger ages reported higher current life satisfaction

    Confidence: limitedRelevance: Suggests timing of autism disclosure may impact long-term wellbeing outcomes
  • 2

    Students diagnosed later showed greater initial happiness about their autism identity upon disclosure

    Confidence: limitedRelevance: Indicates complex relationship between age at disclosure and immediate vs. long-term responses
  • 3

    Participants recommended against waiting until adulthood to disclose autism diagnosis

    Confidence: limitedRelevance: Supports early disclosure practices from lived experience perspective

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Clinical implications

Findings support early, positive autism disclosure practices. Clinicians and parents should consider timing and framing of diagnosis conversations. However, individual circumstances must be considered, and more diverse research is needed to confirm these preliminary findings across different populations and contexts.

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Limitations

Single cross-sectional survey of university students may not represent broader autistic population. Retrospective self-report data subject to recall bias. No comparison group of non-university autistic adults. Causation cannot be established from this observational design.

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Original abstract

People learn they are autistic at different ages. We wanted to know if telling kids they are autistic earlier helps them feel better about their lives when they grow up. We are a team of autistic and non-autistic students and professors. Seventy-eight autistic university students did our online survey.

They shared how they found out they were autistic and how they felt about being autistic. They also shared how they feel about their lives now. Around the same number of students learned they were autistic from doctors and parents. Students who learned they were autistic when they were younger felt happier about their lives than people who learned they were autistic when they were older.

Students who learned they were autistic when they were older felt happier about being autistic when they first found out than people who did not have to wait as long. Our study shows that it is probably best to tell people they are autistic as soon as possible. The students who did our study did not think it was a good idea to wait until children are adults to tell them they are autistic. They said that parents should tell their children they are autistic in ways that help them understand and feel good about who they are.

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Evidence Grade

Emerging

limited

Grade assigned by AutismInsights based on study type and published abstract.

Study Details

Journal
Autism : the international journal of research and practice
Year
2023
PMID
35404160
DOI
10.1177/13623613221086700

MeSH Terms

ChildHumansAdultUniversitiesAutism Spectrum DisorderAutistic DisorderEmotionsStudents