AutismInsights
Back to research database
Emerging

Effect of Children's Autism Spectrum Disorder Severity on Family Strain and Sleep Quality: A Cross-Sectional Online Survey in the U.S.

Journal of autism and developmental disorders2023

Durán-Pacheco Gonzalo, Silkey Mariabeth, Johnson Michelle, Liu Chuang, Clinch Susanne, Law Kiely, Loss Georg

What this study means for families

This large study of over 3,000 families found that when children's autism symptoms are more severe, it creates more stress for parents and affects the child's sleep. Poor child sleep also adds to parent stress. Parent sleep problems were linked to both their stress levels and their child's sleep issues. The research suggests that helping children sleep better or reducing parent stress could benefit the whole family.

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Research summary

This cross-sectional study examined 3,150 caregivers of children with autism aged 3-17 years through the SPARK cohort to understand how autism severity impacts family functioning. The research identified clear pathways showing that increased autism severity strongly affects both caregiver strain and child sleep quality. Child sleep quality served as a minor mediator in the relationship between autism severity and caregiver strain. Caregiver sleep quality was found to depend on autism severity indirectly through its effects on child sleep quality and caregiver strain.

The findings suggest that interventions targeting child sleep improvement or caregiver strain reduction could provide meaningful benefits for families affected by autism.

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Key findings

  • 1

    Increased autism severity strongly affects caregiver strain and child sleep quality

    Confidence: moderateRelevance: Identifies key targets for family support interventions
  • 2

    Child sleep quality was a minor mediator of increasing caregiver strain

    Confidence: moderateRelevance: Suggests addressing child sleep may partially reduce caregiver burden
  • 3

    Caregiver sleep quality depended on autism severity through child sleep quality and caregiver strain

    Confidence: moderateRelevance: Indicates indirect pathways affecting caregiver wellbeing

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Clinical implications

Results support implementing sleep interventions for autistic children and strain reduction programs for caregivers. Clinical services should assess both child sleep problems and caregiver burden as interconnected issues requiring coordinated support approaches.

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Limitations

Cross-sectional design prevents establishing causation. Relies on caregiver self-report which may introduce bias. Sample demographics and response rates not specified in the abstract, limiting generalizability assessment.

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Original abstract

To better understand the impact of children's autism spectrum disorder (ASD) severity on families, we evaluated pathways through which ASD severity affected child sleep quality, caregiver strain, and caregiver sleep quality. In a cross-sectional analysis through the U.S.-wide Simons Foundation Powering Autism Research for Knowledge (SPARK) cohort. Participants were caregivers of dependents with ASD aged 3-17 years (N = 3150). We found that increased severity strongly affects caregiver strain and child sleep quality.

Child sleep quality was a minor mediator of increasing caregiver strain. Caregiver sleep quality depended on ASD severity only through child sleep quality and caregiver strain. Interventions aimed at improving child sleep quality or reducing caregiver strain could positively impact families of children with ASD.

View Original Paper

View original paperFull paper via publisher (may require subscription)

Evidence Grade

Emerging

moderate

Grade assigned by AutismInsights based on study type and published abstract.

Study Details

Journal
Journal of autism and developmental disorders
Year
2023
PMID
35118575
DOI
10.1007/s10803-022-05457-7

MeSH Terms

HumansChildAutism Spectrum DisorderSleep QualityCross-Sectional StudiesAutistic DisorderCaregiversSleep Wake Disorders