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Perceptions of the Professionals and Parents of Children with Autism Spectrum Disorders About Autism Services; A Qualitative Study.

Journal of autism and developmental disorders2023

Gholipour Kamal, Ghiasi Akbar, Shahrokhi Hassan, Dadashi Zeinab, Javanmard Simin, Tabatabaei Seyyed Hasan, Iezadi Shabnam

What this study means for families

This study looked at problems with autism services by asking both professionals and parents about their experiences. They found three main problem areas: how autism care is managed, lack of support programs and facilities, and organizational issues with services. The research shows there are many challenges in providing good quality autism services and support programs for parents.

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Research summary

This qualitative study explored challenges in providing autism services from the perspectives of both professionals and parents of children with autism spectrum disorders. Researchers identified three main categories of challenges: management shortcomings in autism care, inadequate supportive programs and facilities for children and families, and organizational barriers in service delivery. The study used content analysis methodology to analyze participant responses. Findings revealed widespread challenges in delivering sufficient, high-quality autism services and parent empowerment programs.

The research highlights systemic issues affecting autism service provision but does not specify sample size, participant characteristics, or detailed methodology.

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Key findings

  • 1

    Three key categories of challenges identified: management shortcomings, inadequate supportive programs/facilities, and organizational service delivery barriers

    Confidence: limitedRelevance: Provides framework for understanding systemic autism service challenges
  • 2

    Wide range of challenges exist in providing sufficient and high-quality autism services

    Confidence: limitedRelevance: Highlights need for service quality improvement across autism support systems
  • 3

    Challenges identified in parent empowerment programs

    Confidence: limitedRelevance: Indicates gaps in family support services requiring attention

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Clinical implications

Results suggest need for systematic review of autism service delivery models, improved coordination between services, enhanced parent support programs, and organizational restructuring to address identified gaps in autism care provision.

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Limitations

Sample size and participant characteristics not reported. Limited methodological details provided. No information on data saturation, researcher bias controls, or validation procedures. Findings may not be generalizable across different healthcare systems or cultural contexts.

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Original abstract

In this qualitative study, we aimed to explore the challenges of providing services and supports for children with autism spectrum disorders (ASD) and their families from the perceptions of professionals and parents of children with ASD. We classified the results of the study into three key categories including shortcomings in the management of children with ASD; shortcomings of supportive programs and facilities for children with ASD and their families; and organizational challenges in providing services for these children. We analyzed data using the content analysis method. The results showed that there is a wide range of challenges in providing sufficient and high-quality services for children with ASD and empowerment programs for their parents.

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Evidence Grade

Emerging

emerging

Grade assigned by AutismInsights based on study type and published abstract.

Study Details

Journal
Journal of autism and developmental disorders
Year
2023
PMID
34982323
DOI
10.1007/s10803-021-05388-9

MeSH Terms

HumansChildAutism Spectrum DisorderAutistic DisorderParentsQualitative ResearchChild Development Disorders, Pervasive